Health · Healthcare & Policy · 2 hrs ago

Kerala orders 2,159 bottles of SMA medicine to maintain supply

Kerala orders 2,159 bottles of SMA medicine to maintain supply

Kerala has ordered 2,159 bottles of risdiplam to help ensure people with spinal muscular atrophy continue to receive the medicine.

SMA is a rare genetic condition that progressively weakens muscles and can affect movement and breathing.

The state provides treatment through its KARE scheme and an SMA clinic at SAT Hospital in Thiruvananthapuram.

A generic version now costs about ₹11,000 a bottle, compared with a negotiated price of ₹5.5 lakh for the earlier version.

Children under 12 have received risdiplam free since 2022, and the state says it is working to provide eligible people with lifelong access.

Two children with Type 2 SMA are eligible for free treatment, and a third child will be assessed before treatment is arranged.

Kerala says it will also consider wider medical and family support, while continuing to provide therapies and equipment alongside the medicine.

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