Archive · 4 Sep 2025
Birbhum Girl Battles Rare Disease, Awaits Government Aid
A little girl in India has a rare disease that stops her body from breaking down a certain part of food.
She needs special medicine that costs a lot of money each month.
Her family is poor and can't afford it.
They are hoping the government will give them money to help pay for the medicine.
The girl's father makes very little money, and her older brother died from the same disease years ago.
Doctors say the medicine can stop the disease from getting worse, but it is very important that she gets the medicine as soon as possible.
Because she was diagnosed with the disease later in life, her health is already impacted.
A seven-year-old girl in Birbhum suffers from hereditary tyrosinemia type 1 (HT1), a rare disease.
The family is waiting for government funds to afford the ₹50,000 monthly cost of her medication.
The girl's father earns ₹5,000 a month, and her older brother died from the same disease in 2015.
Doctors emphasize the urgency of treatment to prevent further health deterioration and potential liver issues.
The family has registered with the rare disease center at SSKM Hospital to seek financial support.
- Who
- A seven-year-old girl and her family.
- What
- Battling a rare disease (HT1) and awaiting government aid.
- When
- The family registered with a rare disease center last month.
- Where
- Birbhum, West Bengal and SSKM Hospital, Kolkata.
- Why
- To receive financial assistance for costly medications and treatment.
- Disease
- Hereditary tyrosinemia type 1 (HT1)
- Age of Girl
- 7 years old
- Monthly Medicine Cost
- ₹50,000
- Father's Income
- ₹5,000/month
- Location
- Birbhum, West Bengal