Archive · 13 Jan 2026

Man with Rare Condition Faces Insensitivity Despite 26 Surgeries

Man with Rare Condition Faces Insensitivity Despite 26 Surgeries

Amit Ghose is a 36-year-old man from Birmingham, UK, who was born with a rare condition called neurofibromatosis type 1.

This condition caused tumors to grow along his nerves, leading to a lot of surgeries.

He had to have his left eye removed when he was just 11 years old.

Amit used to feel very self-conscious about his appearance and thought he would never find love.

However, everything changed when he met his wife, Piyali, who helped him accept himself.

Now, Amit works at a law firm and feels happy.

Despite this, he still faces insensitive questions and stares from strangers.

He recently shared a video about his experiences, which got a lot of views and mixed reactions.

Some people were supportive, while others were not so kind.

Amit wants people to understand that his appearance is real and to be more accepting of differences.

Sources