Archive · 13 Jan 2026
Man with Rare Condition Faces Insensitivity Despite 26 Surgeries
Amit Ghose is a 36-year-old man from Birmingham, UK, who was born with a rare condition called neurofibromatosis type 1.
This condition caused tumors to grow along his nerves, leading to a lot of surgeries.
He had to have his left eye removed when he was just 11 years old.
Amit used to feel very self-conscious about his appearance and thought he would never find love.
However, everything changed when he met his wife, Piyali, who helped him accept himself.
Now, Amit works at a law firm and feels happy.
Despite this, he still faces insensitive questions and stares from strangers.
He recently shared a video about his experiences, which got a lot of views and mixed reactions.
Some people were supportive, while others were not so kind.
Amit wants people to understand that his appearance is real and to be more accepting of differences.
Amit Ghose was born with neurofibromatosis type 1, a rare genetic disorder causing tumors along nerves.
He underwent 26 surgeries, including the removal of his left eye at age 11 due to complications.
Ghose struggled with self-acceptance and believed his appearance would prevent him from finding love.
His wife, Piyali, helped him embrace his appearance, transforming his outlook on life.
Despite his happiness, Ghose still faces daily challenges with public reactions, including insensitive questions and stares.
- Who
- Amit Ghose, a 36-year-old man from Birmingham, UK
- What
- Amit Ghose was born with neurofibromatosis type 1, a genetic disorder that causes tumors to grow along nerves, leading to 26 surgeries and a visible facial difference
- When
- The article was last updated on January 13, 2026
- Where
- Birmingham, UK
- Why
- To raise awareness about living with a rare condition and the challenges of public reactions
- Name
- Amit Ghose
- Age
- 36
- Location
- Birmingham, UK
- Condition
- Neurofibromatosis type 1
- Surgeries
- 26
- Occupation
- Works at a law firm
- Spouse
- Piyali
- Video Views
- 30 million