Archive · 5 Jun 2025
Calcutta HC Seeks Enhanced Rare Disease Care
The Calcutta High Court is working to improve care for people in West Bengal with rare diseases.
The court wants more specialized centers, like the existing one at IPGMER, so people don't have to travel far.
The court also suggested increasing the monthly financial aid for those with rare diseases and ensuring they get necessary medication, like Deflazecort, for at least two months.
Additionally, the court wants to establish special ICU units and provide wheelchairs to help patients, and is considering subsidies for the purchase of these.
These measures aim to ease the challenges faced by people with rare diseases and their families.
Calcutta High Court advocates for more centers of excellence for rare diseases in West Bengal.
The court suggested increasing the monthly stipend for rare disease patients from Rs 1,000 to Rs 5,000.
The court is looking into establishing more centers in Bengal to help patients from neighboring states.
The court wants to ensure patients receive Deflazecort for at least two months.
The state was directed to submit a report on the establishment of ICU units for exclusive care.
- Who
- The Calcutta High Court, patients with rare diseases, the state government.
- What
- The court is suggesting various measures including more centers, increased stipends, and better access to medication and equipment to improve the care for people with rare diseases.
- When
- The court is currently addressing this issue.
- Where
- West Bengal, specifically in hospitals and care centers.
- Why
- To improve care and accessibility for individuals with rare diseases.
- Location
- West Bengal
- Court
- Calcutta High Court
- Existing Monthly Stipend
- Rs 1,000
- Proposed Monthly Stipend
- Rs 5,000
- Specific disease mentioned
- Muscular dystrophy
- Deadline for wheelchair supply
- June 13
- Report submission date for ICU units
- June 27