Archive · 23 Jul 2025
2-Year-Old Kaashvi Battles Rare Disease, Needs Support
Kaashvi, a 2-year-old girl, has a rare disease called Spinal Muscular Atrophy (SMA) Type 2 that weakens her muscles.
The only way to help her is with a special medicine called Zolgensma, which costs a lot of money.
Her family needs help paying for it so Kaashvi can get better.
This disease makes it hard for her to move and breathe.
Zolgensma can fix the problem by replacing the bad gene that's causing the illness, potentially letting her live a healthy life.
Two-year-old Kaashvi is battling Spinal Muscular Atrophy (SMA) Type 2, a rare genetic disease.
Kaashvi's only hope is Zolgensma, a gene therapy costing ₹16 crore.
The family from Kolkata needs financial support for the treatment.
Symptoms include progressive muscle weakness, potentially leading to breathing difficulties.
Zolgensma can replace the faulty gene and potentially cure the symptoms.
- Who
- Kaashvi, a two-year-old girl.
- What
- Kaashvi is battling Spinal Muscular Atrophy (SMA) Type 2, a rare genetic disease.
- When
- Diagnosed in June of this year.
- Where
- Kolkata
- Why
- To replace the faulty gene causing SMA Type 2.
Families Facing High Medical Costs
Medical Industry and Treatment Costs
Cost of Treatment
Families Facing High Medical Costs
High cost of life-saving treatments places a significant financial burden on families.
Medical Industry and Treatment Costs
The cost is necessary to fund research and development of the treatments.
- Name
- Kaashvi
- Age
- 2 years old
- Condition
- Spinal Muscular Atrophy (SMA) Type 2
- Treatment
- Zolgensma gene therapy
- Treatment Cost
- ₹16 crore
- Family Location
- Kolkata