Archive · 23 May 2025
Laborer Appeals for Aid: Infant's Rs16 Cr SMA Treatment
Imagine a little baby named Ayush who has a rare disease called SMA.
His muscles are getting weaker, and he can't move well.
Doctors say he needs a special shot called Zolgensma that costs a lot of money, about 16 crore rupees.
If he gets the shot before he's 16 months old, it could help him get better.
His dad is a worker who doesn't have much money, so he's asking for help from anyone who can give it.
The doctors say this shot is very important to save the baby's life.
Four-month-old Ayush diagnosed with spinal muscular atrophy (SMA) needs a Rs16 crore gene therapy injection.
The injection, Zolgensma, must be administered before Ayush turns 16 months old to halt the disease's progression.
Ayush's father, a daily wage worker, is seeking financial aid for the expensive treatment.
Doctors at NSH Critical Care Hospital in Nagpur emphasize the urgency of the gene therapy.
Arjun Gajar has appealed to local representatives and organizations for support.
- Who
- Ayush and his parents
- What
- A four-month-old infant needs a gene therapy injection to treat spinal muscular atrophy.
- When
- Diagnosed approximately four months after birth; treatment needed before 16 months old.
- Where
- Chandrapur, India
- Why
- To halt the progression of spinal muscular atrophy and potentially save his life.
Families in Need
Limited Resources
Financial Aid
Families in Need
Families require financial support for life-saving treatments that may be unavailable without it.
Limited Resources
Government or charitable organizations face budget constraints, making it challenging to fund expensive treatments.
- Child's Name
- Ayush
- Diagnosis
- Spinal Muscular Atrophy (SMA)
- Treatment Needed
- Zolgensma gene therapy
- Treatment Cost
- Rs16 crore
- Father's Name
- Arjun Gajar
- Father's Occupation
- Daily wage worker
- Hospital Contacted
- NSH Critical Care Hospital, Nagpur